In Plain English:
Autism treatments & management techniques that succeed in neuroscience labs often fail in public schools. (And we really, really need to figure out why…)
What it covered:
Even though there are thousands of neuroscientists working on developing management and treatment options for autism, very few of those techniques make it into real-world homes and classrooms. Despite the growing public concern about autism, there aren’t very many people focusing on translating data into things teachers can do to help their autistic students learn.
(The issue here is that the type of training you need to be able to interpret an fMRI and the type of training you need to be able to understand the social dynamics in how public school teachers interact with their students are two very, very different types of training. And since most graduate programs assume that you’re going to be spending 60-80 hours per week working on stuff related to your degree, hardly anyone has time to pursue graduate level work in both of those areas, much less decipher the intersections and implications of the two….But that makes the handful of people who do work on translating neuroscience into implementable best practices all the more valuable.)
David Mandell is one of those people. His background is in public health, so his research focuses more on the social and infrastructural issues around autistic people’s education and treatment than what’s going on in their brains. He covered a huge amount of ground in a relatively short talk, but the takehome message was the point he led with: Translational research, or research that focuses on how to implement lab scientists’ ideas in real-world clinical settings, is “the biggest gap in the autism research portfolio” and that we need to do better.
Hospitalization, special ed, and behavioral interventions are all expensive. And the costs don’t disappear once the autistic kids become adults. “We think about autism as a childhood disorder, but the life expectancy for folks with autism is not that different than the general population,” Mandell pointed out. “They spend most of their lives as adults.”